Saturday, 14 January 2012

The beginning

28 June 2011

I was diagnosed with post streptococcal glomerulonephritis (germ from the throat which infected my kidneys) when I was just 10 years old!

I missed a lot of school because I was always in and out of hospital, I had a lot of home tuition but most of the time that got canceled due to me being in hospital. I don’t remember much from the beginning of my illness but I do remember being in hospital all the time. I have been on all sorts of medication and had every test going.

Over the years, I have learnt a lot more about my illness and it has only got harder. Doctors always said that I would need a transplant but never really could tell when my kidneys would fail on me. I have only just been put on the waiting list for a donor and now just have to wait. I have been on dialysis since July2o1o and it has been very stressful and sometimes I can’t cope, but it’s the only thing keeping me alive.

I have to do dialysis 3 times a day so it’s really hard fitting it into my day, especially work. I can only work 5 hours a day before I have to be home doing my next exchange and I can only work 2 days a week otherwise I get too tired and really ill.

I sometimes get days where I get really upset over my illness as it holds me back from doing what I wanna do in life. I’m always having to be back at home at a certain times to do dialysis. I can’t plan a days out with friends because I have to be back. I have lost a lot of mates through this and missing out on social events because of it, so it is really hard sometimes but there is nothing I can do but just get on with it.

I have the support of my boyfriend and a few mates that I haven’t lost through the illness, but support sometimes just doesn’t help take away the pain..


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